Clinical Background
Somatostatinomas are pancreatic neuroendocrine tumors that produce excessive amounts of somatostatin and are located either in the duodenum or pancreas.
Epidemiology
- Incidence – <1/1,000,000
- Age – median is 40s
- Sex – M:F, equal
- Occurrence – usually sporadic
Risk Factors
- Genetic
- Small percentage associated with multiple endocrine neoplasias type 1 (MEN1)
- Also may be associated with Von Recklinghausen disease (type 1 neurofibromatosis)
Pathophysiology
- Locations for tumor – duodenum or pancreas
- Hormone secretion is somatostatin
- Inhibits the release of many hormones (gut hormones including insulin, pancreatic polypeptide, glucagon, gastrin, secretin, glucose-dependent insulinotropic peptide and motilin)
- Neurotransmitter function
- Significant number of these tumors are metastatic
Clinical Presentation
- Somatostatinoma syndrome
- Diabetes mellitus – occurs in about 10%
- Cholelithiasis
- Diarrhea/steatorrhea
- Tumor may be found incidentally if not associated with the syndrome (patient will be asymptomatic)
- Metastatic disease is frequently found at the time of diagnosis
Treatment
- Symptomatic relief
- Somatostatin analogues
- Resection
Diagnosis
- Indications for testing – neuroendocrine symptoms compatible with tumor; pancreatic tumor with neuroendocrine symptoms
- Laboratory testing
- Somatostatin level – ≥160 pg/mL
- Histology
- Nested or trabecular arrangement of small- to medium-sized cells
- Finely granular eosinophilic cytoplasm
- Central round to oval nuclei
- Stippled chromatin (“salt and pepper”)
- Immunohistochemistry – synaptophysin, chromogranin and somatostatin
- Imaging studies
- CT and/or MRI
- Somatostatin-receptor scintigraphy
Differential Diagnosis
- Diabetes mellitus (type 1 or 2)
- Cholecystitis
- Malabsorption syndromes
- Other neuroendocrine tumors – VIPoma, carcinoid
- Gastroenteritis (chronic or relapsing)
Pharmacogenetics and Therapeutic Drug Monitoring
Indications for Laboratory Testing
- Tests generally appear in the order most useful for common clinical situations
- Click on number for test-specific information in the ARUP Laboratory Test Directory
| Test Name and Number |
Recommended Use |
Limitations |
Follow Up |
| Somatostatin 0098192 Method: Extraction/Radioimmunoassay |
Diagnose somatostatinoma
|
|
|
| Immunohistochemistry Stain Offering arup005 Method: Immunohistochemistry |
For fixed tissue samples, consultative services as well as immunohistochemical staining for synaptophysin, chromogranin, NSE, somatostatin, AE1/AE3, and PGP 9.5 are available |
|
|
Comprehensive Review: July 2009
Last Update: August 2009